In May 2013 L was born, and our journey began. He had gastroschisis, and we spent 131 days in the NICU through 3 major surgeries to reconstruct lost small intestine before going home with a poorly-functioning 20% of the small bowel he should have, along with TPN, g-tube, home health and a slew of other things I never imagined would be part of my world.
This is a blog about the path we’re traveling. It’s a story of inspiration, and of weakness. It’s a story of hope, and of honesty. This is a blog about what it really means to be a gutsy family.
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