Resources

Oley Foundation

Feeding Tube Awareness Foundation

Avery’s Angels Gastroschisis Foundation

Short Bowel Syndrome Foundation

Short Bowel Syndrome Foundation for Children of New England

Short Gut Syndrome Families Support Group

Short Bowel Syndrome Foundation Families Group

Ronald McDonald House

Caring Bridge (free site for keeping friends and family updated)

MedGift (free site for fundraising, calendaring, wish lists and updates)

Additional resources can be found on the No Guts All Glory Resource Page and the Avery’s Angels Resource Page

 

Blogs about SBS

It Takes Guts (YouTube channel with video tips)

No Guts All Glory

Guts and Gumption

 

Prescriptions, Vitamins and Supplements

The Oley Foundation has an Equipment/Supply Exchange and also offers a information about getting assistance, and about discounts and coverage.

DripDrop offers a 30% discount if you buy from their website by the case. Contact their customer service and ask about case discounts for long-term use of DripDrop to treat chronic medical conditions.

If you or your child take CREON (pancrelipase) and have private insurance, you can get assistance with copays and also free vitamins via CREON OnCourse

 

Tubie/Surgery Toys

Tubie Friends

Healing Helpers

 

Dealing with Trauma

This is important: Everything Doesn’t Happen for a Reason

 

STEP/Bianchi

http://surgery.med.umich.edu/pediatric/chirp/clinical/mm/surgopt.shtml

https://apps.childrenshospital.org/clinical/step/

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