Feeding Tube Awareness Foundation
Avery’s Angels Gastroschisis Foundation
Short Bowel Syndrome Foundation
Short Bowel Syndrome Foundation for Children of New England
Short Gut Syndrome Families Support Group
Short Bowel Syndrome Foundation Families Group
Caring Bridge (free site for keeping friends and family updated)
MedGift (free site for fundraising, calendaring, wish lists and updates)
Gus Gear (custom covers for central lines, feeding tubes, ostomy pouches, and more)
Information about supporting children on enteral or parenteral nutrition in a school setting: http://journals.sagepub.com/doi/pdf/10.1177/0884533617718471
Additional resources can be found on the No Guts All Glory Resource Page and the Avery’s Angels Resource Page
Blogs about SBS
It Takes Guts (YouTube channel with video tips)
Prescriptions, Vitamins and Supplements
The Oley Foundation has an Equipment/Supply Exchange and also offers a information about getting assistance, and about discounts and coverage.
DripDrop offers a 30% discount if you buy from their website by the case. Contact their customer service and ask about case discounts for long-term use of DripDrop to treat chronic medical conditions.
If you or your child take CREON (pancrelipase) and have private insurance, you can get assistance with copays and also free vitamins via CREON OnCourse
Tubie/Surgery Toys
Dealing with Trauma
This is important: Everything Doesn’t Happen for a Reason
STEP/Bianchi
http://surgery.med.umich.edu/pediatric/chirp/clinical/mm/surgopt.shtml
this gutsy life 